Yesterday I answered all of the Fun and Deep Questions from my little Formspring experiment. I got a lot of questions related very specifically to infertility and our journey, so I wanted to give those answers their very own (very long) post.
Blogging About Infertility
Who is your favorite ALI blogger and why (name up to 3)? What are the essentials you look for in a good writer/blogger?
We’ll just start this off with a bang, shall we?
I’ll say it plainly. I freakin’ love Mel’s blog, Stirrup Queens. Is she one of the leading superstars of the ALI blogging world? Totally. But that’s not why I love her blog. I love her blog because it is at once down to earth as it is philosophical. She pushes us to uncomfortable but necessary patterns of thinking and perceiving the world around us. And she’s wicked funny and quite provacative, too. Don’t believe me? Read her BlogHer Community Keynote post from 2008. It’ll knock your socks off.
I have a LOT of blogs in my Reader and I have to be very honest: sometimes it’s really hard to keep up with them all. But there are a few I read consistently, and one of them is A Half Baked Life, by Justine. She juxtaposes scenes of her life with beautifully written and photographed recipes (like this very moving post from a couple of weeks ago about the Value of a Life). Plus, she’s from NJ so that wins a point in my book. There’s just something about her writing (and most definitely about her recipes) that just always keep me reading. Justine, I may not comment very often, but know that I read you whenever you post 🙂
Good writers feel like old friends when I read them. I may never meet you in real life (and I would love to!) but there’s a connection I feel when reading their stories. And good writers are those who leave me with stories that stick with me, that I remember days or even months later.
What advice would you give a fellow infertility blogger to make money out of her blog?
This question is actually pretty tricky, as I’m still figuring out myself. The first question you have to ask yourself is: how much are you willing to sell out? I hate to put it plainly, but everyone a) has a price and b) you need to know how much trust capital you’re willing to give out. The trust you’ve built with your readers dips every time you seek to monetize your blog. For me, a lot of this is experimentation. But in the long run (and hopefully sooner rather than later run) I want to turn my blog into one part of my one-woman business (as yet to be determined).
If you have an Etsy store, as many ALI bloggers I know do, start pimping it out on your blog if you aren’t already. Consider applying for Affiliate ads or even selling your own ad space. I hate to say this, but check some of the mommy blogger resources out there, as they have a lot of great advice about monetizing your blog. I’m a big fan of resources like The SITS Girls, Mashable, Moxie Tonic Communications, and MomComm.
But make sure you sit down and have that talk with yourself: is it about the writing? Is it about sharing your story? Is it about money? Is about all of these, some of these? And how much trust capital are you willing to give out?
Our Infertility Journey So Far
Where are you on your infertility path right now? Are you still leaning more towards a DE cycle than adoption at this point? And when can we look forward to your cycle?
There have been a few things since my last infertility journey update in June. Right now we are still leaning very heavily toward donor egg, although, and this is totally random: I may have ovulated on my own this week, but because I’m rocking the Zombie Leper Shingles, not so much with the sex this week. We are going to continue our “experiments in natural babymaking” again. And just in time for the hurricane: a light period. So no “we’re stuck inside and there’s nothing else to do” sex either. Awesome.
Right. So, still leaning toward donor egg but adoption is not off the table as a second option. The challenge right now is that everything depends on my insurance. I have, very luckily, rockin’ insurance that will cover basically half of our total costs. Right now, we’re looking at about $15K out of pocket. However, and this is a post for its own day, I kind of want to carve my eye out with a pen when I think about staying at my current job for more than the next six months. There is a very good chance that I might leave for bigger, better, and just plain different things (which, by the way… Hey folks, I’m a highly skilled writer with some serious web savvy & graphics design skills. Hire me now!) and with that I would lose my insurance.
Which would then throw us off even longer.
The original game plan was to select a donor by the end of this year, get the ball rolling, and aim for an April/May transfer if everything went swimmingly. And right now, things are up in the air because I need to make a game plan should I leave my job, which is a very real possibility and soon. I promise next to my immediate family, my blog readers will be the first to know when things get off the ground.
How does your husband feel about you being so public about your emotions and your relationship? Has the blog affected your relationship? If so, how?
I started this blog as a way to cope and initially, wrote under a pseudonym. I’d ask, and then nag my husband: “Did you read my blog today?” Sometimes the answer was yes, of course, and other times he’d play catch up the same way I do with other blogs I follow. There’s a certain degree of self-censorship that occurs; rarely do I write about some of the more intimate details of say, our sex life. But I have written about some nasty fights.
When I broached the subject of doing my video and revealing my name and face, I of course ran it by him. He was more than supportive and has continued to be even more so since then. Larry gets that my blog is more than just dumping my emotions for the world to read (which yeah, a lot of times it can be). He gets that this fuels a sense of impassioned personal fulfillment for me. And that as much as this blog is my space, Larry is very much a part of it. Sometimes, I even let him write here (and I hope to have him do it more in the future).
It’s hard to say if this blog has affected our relationship; it certainly factors into our life together, say, watching an episode of Castle together versus writing a blog post. Larry understands that my blog has become a platform for me to finally start figuring out just what the heck I want to do with my life, and in being supportive of me, my goals, and this blog, then it’s fair to say that yes, in that sense, my blog has affected our relationship for the better.
Have you ever thought about getting a lap band? I bet it would solve some problems for you like it did for me.
Believe it or not, I have considered it. I know someone who’s getting it done next month, actually. I think unfortunately, from what I’ve read… I’m not fat enough. Don’t get me wrong, this Captain Cranky Pants is rockin’ some serious extra weight. (When I was a freshman in college, I weighed a mere 118 lbs. Now- yeah, a bunch more. Like, a LOT more.) But amazingly, I’m still not overweight enough to qualify for the medical necessity.
At this point, it would be considered elective surgery and as someone who’s already had 2 organs removed already, I don’t really want to volunteer for more surgery if I don’t have to. I just need to get off my ass and get in shape and perhaps stop indulging in my guilty pleasure all the damn time (see yesterday’s post).
Infertility Support & Resources
I am unfamiliar with the donor egg process. How do you choose donor eggs? Do they have photos of potential donors? Are there specific requirements that you and your husband have for the potential donor?
There’s definitely a lot to answer in this one question. So first, let me point you to a couple of posts that might be helpful. The first is this helpful overview of the donor egg process from RESOLVE, the National Infertility Association. The second is a mish-mash of helpful info from RESOLVE of New England’s Donor Egg Decision-Making Seminar back in June, that I live-tweeted. The third is a post I wrote early last year about wrapping my brain around choosing donor egg as our option: A Donor For Your Thoughts. That post might help answer how we chose donor eggs.
As far as what we’re looking for in a donor… we’re looking at three basic characteristics:
- Brunette
- Caucasian*
- College educated with good academic history
That’s pretty much it. The * indicates that ideally, we’d love a donor of Japanse or Asian descent, as I’m half-Japanese. And to make things in a really nice neat little bow, it would be awesome if she were Jewish. But finding a Japanese-Jewish donor is a bit of a challenge, so we’ll settle on those top three for now.
Keiko, I’m a twenty three year old woman who desperately wants to conceive someday. I have poly-cystic ovarian syndrome and have been told that I’ll likely never have children of my own. Help.
First of all, I just want to say that I’m so sorry you’ve gotten this diagnosis. PCOS can be a very overwhelming disease when you’re first diagnosed, but take solace in knowing there is a huge online community out there for support and education.
So here’s my advice.
- Do you like your doctor? Trust them? Feel comfortable at your appointments? If not, consider seeking a second-opinion from a doctor you are more comfortable with. You want to make sure that not only you have an accurate diagnosis, but a professional who’s willing to work with you whom you trust.
- Do your homework, but do it in moderation. It’s easy to don the Dr. Google hat and get sucked into the self-diagnosis and worrying vortex. Pick up a couple of trusted PCOS resources. Check out a few online communities. But give yourself only an hour or less a day to do it- you don’t want to overwhelm yourself.
- From what I know of PCOS, diet plays heavily into the disease, so it’s worth making an appointment with a nutritionist. I know there are also implications for other health issues so you want to make sure you’re giving your body the best nutrition you can.
- Find other PCOS bloggers. Read their blogs, reach out, and connect with them. And find those online PCOS communities – I know they’re out there.
- Seek out IRL support, too. Whether it’s a private therapist, a clergy member, a friend you can count on, or even a support group – it’s important to talk about how it’s affecting you emotionally.
That’s all I’ve really got. Since I was originally diagnosed with PCOS in 2000 but then went to college and had my head up my ass, I don’t actually have any good PCOS resources off-hand. I’m more in the POF/POI camp at this point. That said, I know I have many readers here who are in the PCOS boat.
Readers with PCOS: can you post some of your best/favorite PCOS resources in the comments here for our question-asker? I would be much appreciative as I trust your experiences over what I could find in a simple Google search.
Whew! Y’all have about worn me out with these questions. Thank you to everyone who asked a question. You’ve given me a lot of cool things to think about, spawned some excellent prompts for future posts (like my conversion to Judaism story the last week of September), and given me the opportunity to open up about some things I haven’t yet had a chance to talk about here.
Now, it’s off to batten down the hatches. For those of you in Irene’s path, stay safe out there this weekend!
Amy Demma says
Re: PCOS: I come from a long-line of PCOers (one glance at my family tree and one cannot deny the hereditary nature of syndrome), I was diagnosed at 17, have managed to keep my insulin resistance in check w/diet and exercise and want to share w/each of you that I am the proud and blessed mom of IVF twins (conceived at a time when success rates for women in their late 20s was less than 20%). But I had faith, determination and refused to accept that I would not parent, one way or another, I knew I would, eventually be a mom! There is so much more known about PCOS these days (my mother was tx’d by a neurologist in the 1950s for her PCO symptoms), ART is so far advanced, more and more financial resources are available, you should have nothing but hope…I do, for you!!
Keiko says
Amy, I love it when you tell your story. You’ve got such passion, fire, and hope every time I hear you tell it 🙂
Another Dreamer says
For the PCOS question, I just wanted to second soulcyster.com and the forum it has is located at soulcyster.net It was a huge resource for me in the beginning. I also blog about my PCOS, my issues also include recurrent loss and currently pregnancy though so I know that is sensitive while struggling with diagnosis and treatment. I will say to your questioner that I started on this journey when I was 22, and I know how scary it is. Learning all you can and advocating for yourself is crucial.
Thanks for sharing all this Keiko 🙂 Very interesting. And you two are so cute in that photo!
Keiko says
Thanks! This was a fun experiment to try. And it’s crazy to think that picture is 14 years old. Man alive we were so young!
Melissa N. says
For the reader who asked about PCOS, they are welcome to follow my blog {www.infertilemyrtleme.blogspot.com} as I, too, have a PCOS diagnosis, although mine is atypical for the most part. However, it might help to read through to see what I’ve done and how we’re approaching our IF treatments. You’re not alone! Also, I have a few book recommendations:
-The Fertility Diet by Jorge E. Chavarro, MD, ScD, & Walter C. Willett, MD, DrPH. This book was helpful in laying out why diet is important, how to structure a fertility diet, and also had the do’s and don’ts of what to eat, along with some recipe suggestions.
-A Patient’s Guide to PCOS by Walter Futterweit, MD
-PCOS and Your Infertility by Colette Harris
-Cooking to Conceive by Kim Hahn & the Editors of Conceive Magazine. Had great recipes based on the fertility diet plan.
Love your blog, Keiko. Thank you, as always, for being so open and honest about your IF journey and experiences.
Keiko says
Rock on – thanks for the recommendations. I knew my PCOS ladies would come through!
Justine says
Wow … Keiko, I’m at a loss for words! Thanks for the shout-out … and for being there, reading. 🙂 Some day I am going to meet you in person and we will share sauce.
I’m really looking forward to following the next chapter in your life … though I have nothing useful to say about finding a new job, I can say with some authority that leaving one that no longer fits feels GREAT. I’m going to bet that you’ll find a plan B with insurance, and soon … even though I’m not the gambling type. I’d hire you … oh, wait, that would mean someone would need to hire me … 😉 Or maybe we should start our own business. 😉
Keiko says
Thanks for the reassurance. Everything feels a little frenetic and yet static at the same time right now.
How are y’all holding up in your neck of the woods? Flooding? Power outages? My parents lost power for about 12 hours Sunday night into Monday morning. My in-laws are still without power – both only 20 min away from each other in Camden County.
Justine says
We were lucky … only a brief power outage on Saturday night into Sunday. Flooding didn’t affect us directly, but the Delaware and Raritan were pretty hard hit, and I’m still waiting to hear the worst from my friends in Bound Brook. Hope your in-laws get power back soon!
Heather says
Thanks for the answers to my question about making money from blogs. That’s a very good answer. I have been thinking more about making money from a fertility product website rather than my blog,but they will kind of go together in a way. And writing a book.
What is Etsy?
Good luck with all your future plans. Hope all the baby making and job / insurance things work out just fine. 🙂
Keiko says
Hi Heather – I realize it was just a quick hit/broad overview. Now that I know it’s you who asked the question, feel free to email me with more if you have them.
Etsy.com is a website for people to sell their handmade wares. It’s addictive as a shopper and can be very lucrative for sellers. I know a lot of ALI bloggers have Etsy shops.
Heather says
thanks Keiko – actually I’m not really into homemade stuff, I’m thinking more along the lines of ebooks and mp3s about fertility that I want to sell. But I think I just have to make another website for that.
Amy Demma says
What a beautiful and honest blog, Keiko. Wanted to share, from a professional perspective, some practical advice re: the question related to donor egg selection. While physicality, ethnicity, academic status are all very important (our mental health colleagues confirm just how valid that criteria is), for those who are proceeding w/financial constraints (this first cycle may be your only cycle, for awhile, at least…best to optimize your chances of success), prudent recipient parents will do well to prioritize confirmation of a donor’s fertility and consider matching w/an experienced donor. What I have told so many clients (perhaps hundreds) in order to minimize the risk of a failed cycle (and/or a cycle w/few embryos such that you do not have the option of a second try with frozen embryos) is working w/an experienced donor. Best case scenario is to find a donor who has recently cycled (truly best case scenario is that she has recently cycled at your clinic) or at least has previously cycled and offers to your physician documentation of how she responds to the stim meds, what percentage of her eggs fertilized and if a live birth occured. Also, w/respect to selecting an experienced donor, recipients will pay (either out of pocket or w/insurance) for infectious disease screening, drug and other substance use (including nicotine)screening and for psychological and other screening. She is so screened twice…the risk is that an unknown/not proven donor can therefore, screen-out, at either the first or second round of screening (which occurs months into the process, months after you have made emotional, financial and time investment). A proven donor minimizes the risk of your selecting a donor who will either poorly perform for you or be screened-out (declined by your clinic). Even if you are lucky enough to have insurance, many of the costs of donor egg are not covered by insurance and many of those fees are paid, out-of-pocket and are non-refundable, regardless of whether or not your cycle proceeds to egg-retrieval. Collaborative reproduction is a hugely emotional matter, but it is also entails a lot of very practical matters. The good news is that there are many, many resources available to assist w/a best donor egg strategy. I have written and published many articles on agency selection, donor selection, dealing w/other professionals w/whom you will become engaged and am pleased to share those resources w/anyone who reaches out to my office. Also happy to provide resources that I find to be of particular value from my mental health colleagues and my legal colleagues. Lastly, my go-to resource for anyone considering donor egg is: http://www.pved.org (Parents Via Egg Donation) a closed, private community providing top-notch information to prospective and previous recipient parents of donor gametes and donor embryo. Marna Gatlin, founder of PVED, is regarded, by many professionals and colleagues as offering the most warm, welcoming but absolutely the most informative community for those considering donor egg.
I sincerely wish each of you the very, very best, if choosing donor egg, you are pursuing a family building option which provides impressive, compelling and encouraging success rates.
Keiko says
Amy, thank you so much for your thorough comment. As always, you’re my go-to donor egg resource!
We’re still weighing out the best options for limited finances. I did find this particular part of your advice rather helpful and something I hadn’t considered:
“Best case scenario is to find a donor who has recently cycled (truly best case scenario is that she has recently cycled at your clinic)”
Brilliant advice. We’re looking at working with the Big Name IVF Clinic Around Town, so it’ll be worth it to call and find out and see what their donor resources are like, and what area agencies they recommend.