My followup visit to my initial diagnosis is next Friday, 4/24. I’m having my FSH, LH, and estradiol retested on Tuesday. I’m assuming that since I haven’t bled and it’s been over 2 weeks since my progesterone challenge, my estradiol levels will continue to be low, my FSH high, and my LH just hanging out in mid-range levels.
I have been having minor panic attacks and just general anxiety over this appointment… the waiting is killing me, and yet, I know I’m just going to hear in person what I’ve already been told via email, and I’m sure emotionally, I’m going to feel like I did the day I first found out. Thankfully, I will have my husband there with me, and in a way, we’ve been kind of emotionally preparing ourselves for this, but it still doesn’t make the waiting easier.
Since my Dx email, Dr. Gross has recommended that I compile a list of questions to email to him before the appointment. I’ve been researching like a fiend, and so far, here’s the lists that I’ve come up with. I’m certainly open to suggestions that anyone might have.
Next Steps
- Any speculation as to what may have caused this?
- What is the likelihood that my high FSH could be the result of my unilateral ovariectomy combined with coming off hormonal birth control?
- Should I be tested for any autoimmune disorders given POF and my hypothyroidism (Hashimoto’s thyroidosis, Lupus, etc.)?
- Barring any autoimmune disorders, what are the implications for my health with a diagnosis of POF combined with hypothyroidism?
- Should my remaining ovary be monitored for any complications with any cysts, if present?
- What are the next steps in terms of any further diagnostic testing? (FHS, LH, estradiol to be tested 4/21; Autoimmune disorders if suspected; Ultrasound on right ovary?)
Family Planning Concerns
- Based on my numbers, is spontaneous ovulation a possibility?
- Do my current hormone levels/hypothyroidism affect the consistency of cervical mucus?
- Can I still rely on fertility awareness to monitor possible ovulation?
- Is is possible for women with POF to sustain a pregnancy to term, whether naturally or through IVF (given that women with a high FSH have a greater risk of miscarraige?
- How can I determine if anything is left in my ovarian reserve? Should I have Anti-Mullerian Hormone testing done? What does this entail? Timeline?
- If there are eggs to be saved, can they be retrieved? Frozen? How long are they good for?’
- Should my husband have semen analysis performed? When?
- In terms of timeline for pursuing any artificial reproductive technology, what would you recommend?
General Health Concerns
- Given that I was instructed to go off hormonal birth control, is hormone replacement therapy a realistic treatment option for me? Do the benefits outweigh the costs?
- Cholesterol: I know this is exacerbated by hypothyroidism. Is the POF contributing at all as well? Will HRT help in treating cholesterol issues as well?
- What kind of supplements would you recommend (calcium, vitamin D, anything to help with POF or boost fertility)? Are estrogen supplements safe/recommended given my history of migraine?
- Minor menopausal symptoms: hot flashes, dizziness, insomnia, feeling unfocused/spacey; anything I can do to alleviate these symptoms? Anything major I should be on the lookout for?
- Are my testosterone levels a concern? Should anything be done to lower these numbers?
Miscellaneous
- Are there any clinical trials worth investigating? Thoughts on clinical trials/studies of POF in general?
- Do you have any recommendations for infertility-sensitive mental health counseling?
- Do you have any resources for local support groups?
Parker Hills says
Yesterday, while I was at work, my cousin stole my iPad and tested to see if it can survive a 30 foot drop, just so she can be a youtube sensation. My iPad is now destroyed and she has 83 views. I know this is totally off topic but I had to share it with someone!