Gearing Up for Advocacy Day

I’ve got the shoes – slip-on heels that are uber-comfy. And there’s a backup pair of flip flops in my shoulder bag just in case. That’s been the #1 piece of advice I’ve gotten from all of the other bloggers I’ve asked who have participated in Advocacy Day: make sure you have comfortable shoes.

I’m so. freaking. excited. for tomorrow. After work today, I hop onto a flight down to DC amd then starting bright and early at 7:30am tomorrow, Advocacy Day begins with on-site registration and breakfast. We train from 8am to about 10am, and then it’s off to the Senate Office Building. I was thrilled to read on Friday’s Advocacy Day update email that Rep. Debbie Wasserman Schultz (D-FL) will speak to our group at 9am before we head out! Rep. Schultz was one of the 20 co-sponsors of the Family Building Act of 2009 and is a vocal supporter of the infertility community. She spoke with members of RESOLVE in support of our community at a Congressional briefing on infertility last April. I am ver yexcited to hear her speak.

I’m nervous about tomorrow.

The other folks I’ve talked to have all assurred me there’s really no reason to be nervous. Larry said it best to me last night, “What’s the worst that could happen? They say to you, ‘Thanks for sharing your story with me?'” He raises a very salient argument there. But I can’t help it; I’m still nervous. Maybe it’s more nervous excitement. I know I’ll be in the company of over 100 people representing 18 states who will be doing the exact same thing: meeting with legislators and/or their staffers, advocating for infertility awareness and some key action items. And it’s not like we’ll be unprepared: we have plenty of materials we’ve been given over the last few weeks, there are resources online, and we’ll be getting that last-minute training rally first thing tomorrow morning.

Still… I’m nervous 🙂

I’ll also be really candid here: this whole OBL thing? Makes me nervous about retaliation. As much as I think it’s important to release the photos eventually, I’m just praying the White House doesn’t decide to drop those today or tomorrow. Like, seriously folks? Can you just wait until the weekend for that? Please? Thanks. It’s been a few years since I lived in the DC area, but even when we still had the colored terror threat system, I know how the region gets in times of increased security. I had to put this (slightly irrational) fear out there: name it, own it, and realize that there’s not really a whole helluva lot I can do about it.

Tomorrow I’ll be speaking with folks on Capitol Hill about three key issues:

1. Infertility is a disease. I know it seems like such a no-brainer to all of us. Yet, even though WHO and ASRM define infertility as a disease, we haven’t gotten that yet from the CDC. More on that further below.
2. Getting support for a possible Family Tax Credit Bill. Similar to the Adoption Tax Credit, a bill has been drafted (but not proposed officially) that would offer infertility patients a credit of their infertility-related out-of-pocket expenses. It would certainly supplement folks like me who live in a mandated state, but would be a tremendous help to the 35 other states with no infertility mandate. As I will be meeting with Senator Kerry’s staff, you better believe I will close the deal on asking him to originate the bill rather that just co-sponsoring, as he’s on both the Senate Finance Committee and its Healthcare subcommittee.
3. Asking our legislators to follow-up with the CDC to inquire about the status of last year’s National Action Plan for Infertility. This was a huge step forward for our community: the CDC last year committed to researching and funding a National Action Plan for “an emerging public health priority.” (That’s how the CDC refers infertility – not as a disease. You can see why issue #1 is important to discuss with legislators.) However, all work has stopped on the Action Plan. We want to get our legislators to commit to pushing the CDC to move forward with their work or to at the very least, find out why work has stopped.

Throw in the mix some highlights of our journey- like the fact that despite the fact that I live in a state that leads the nation in mandated coverage, we’re still looking at $15-20K out of pocket – my effervescent charm, and hopefully, a little luck – it looks like it’s going to be one amazing day.

I also want to give a very public shout out to both Melissa from Stirrup Queens and Julie from A Little Pregnant: when I asked each of them, they were both very kind to give me some fantastic advice about what to expect tomorrow. They’ve both really taken a lot of the edge off of the nervousness.

I’ll be updating throughout the day on Twitter, so if you’re not already following me @miriamshope, that will be the place to read about all of my adventures on Capitol Hill tomorrow. I will of course have a huge update post on Friday with pictures, reflections, and maybe a little video. We’ll see how much I can cram in tomorrow and how fast I can edit any footage.

So with that folks, I’m off. If you’re going to DC, look for the gal in the dark teal blue shirt and dark grey pants; I’ll be wearing a yellow RESOLVE bracelet too. Feel free to come over and say hi – I love to meet folks IRL. For those on the blogosphere, read about my exploits on Twitter tomorrow. And to all: come back Friday and read the recap.

Oh, and wish me luck 🙂